Whitepaper on the Needs and Requirements of Older People with Multiple Conditions to Self-manage Their Health

Authors: Julie Doyle, Evert-Jan Hoogerwerf, Janneke Kuiper, Lorenzo Desideri, Valentina Fiordelmondo, Caoimhe Hannigan, An Jacobs, Lorenza Maluccelli, Emma Murphy, Suzanne Smith, John Dinsmore
Publication type: report
Publication year: 2019

The key challenge facing healthcare systems worldwide is management and support for the increasing number of people with multiple chronic diseases. There is a need to create continued, well-coordinated, person-centred care for people living with multiple health conditions. The EU H2020 ProACT project aims to address this issue by designing new technologies to improve and advance home-based integrated care. This report presents findings from a study investigating the needs of older people with multiple chronic health conditions and the people who support them in managing their health. The aim of the study was to investigate the challenges that different actors in the care ecosystem face and how these are currently addressed in two main ProACT trial sites: Ireland and Belgium. The findings detailed in this report will serve as crucial building blocks for the design of the ProACT system. We also present an overview of the findings of an additional requirements gathering study conducted at the ProACT transferability site in Italy. A first version of this report was originally published in July 2017 and this updated version (June, 2019) presents additional analysis of our user requirements findings. We have conducted further focus groups and re-examined our existing data to determine stakeholder requirements for digital goal setting (a core feature of the ProACT system). These additional requirements for goal setting are presented in detail on page 27. In the final section of this updated report, we have presented the work that we undertook to translate the findings from the user needs study into design requirements for the ProACT system.